Archive for February 6th, 2020

Service of Protecting Your Personal Data

Thursday, February 6th, 2020

Fitness trackers Photo: sundried.com

I’m suspicious of any and all data sharing about my health, my DNA–you name it. Today’s protections can be gone in a flick of a pen with a law change or the information exposed to all as a result of a data breach. Lemmings happily line up to learn about their ancestry and I’m dead-set against that, as I’ve written in this blog, as I’m sure that information won’t be used solely to determine that great grandma came from Minsk.

Thorin Klosowski’s New York Times article, “What to Consider Before Trading Your Health Data for Cash–Don’t trade away your health data without considering the potential issues first” cemented my feelings on the subject.

Photo: healthdata.gov

Some are tempted by discounts, gift cards or financial rewards by an employer, HMO, health care plan or insurance company–or they are pressured by an employer or their team–to enroll in a wellness program involving a phone or fitness tracker. The idea: a healthy lifestyle will lessen the cost of health care.

The tracking device must be covered by the Health Insurance Portability and Accountability Act [HIPAA] or you are unprotected.

Klosowski wrote: “If a program or wearable tracking device is covered by HIPAA, your employer will never have access to the data collected, but if HIPAA doesn’t apply, you’re trusting those entities to not share the data with your employer, third-party ad agencies, or anyone else. Without HIPAA, a wellness program (or, more accurately, the operator or administrator behind it) may sell the health information it collects, which could put you at risk of having your data used against you or unlawfully in some way.”

You are not protected if the device is only HIPPA compliant.

compliancy-group.com

In addition “The U.S. Department of Health and Human Services also adds this distinction,” Klosowski wrote: “If a wellness program is offered as part of a group health plan, your information is protected by HIPAA rules; if the wellness program is offered directly by an employer, the information is not protected.”

In addition, warned Klosowski, you may be asked to answer survey questions you don’t want to, such as whether you plan on becoming pregnant in the next few years. You might now want your employer to know this. Also avoid programs that ask for genetic test results, he suggested.

You may be fine today and diagnosed with something dicey tomorrow that you’d prefer be kept under wraps. When Nora Ephron died her closest friends were shocked, some angry that she hadn’t shared that she had acute myeloid leukemia. She knew if the news was well known she wouldn’t be insured to work on big film productions. She was right.

With an administration that flirts with removing insurance protection for preexisting conditions or a promotion at work in the balance, it would seem that people should take extra care before enrolling in anything they might later regret. Would you be tempted to take money to wear a tracking device?

Photo: npr.org

 

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